Publications, REPORTS AND OTHER RESOURCES

EMPIRICAL STUDIES

PLACEHOLDER TITLE

Bidonde J, Vanstone M, Schwartz L and Abelson J. (2021) An institutional ethnographic analysis of public and patient engagement activities at a national health technology assessment agency. International Journal of Technology Assessment in Health Care.

Denburg A, Abelson J, Giacomini M, and Ungar W. (2021). The moral foundations of child health and social policies: A critical interpretive synthesis. Children, 13;8(1):43. doi: 10.3390/children8010043.

Rowland, P., Fancott, C. and Abelson, J. (2021). Metaphors of organizations in patient involvement programs: connections and contradictions, Journal of Health Organization and Management, 35(2):177-194. https://doi.org/10.1108/JHOM-07-2020-0292

L'Espérance A, O'Brien N, Grégoire A, Abelson A, Canfield C, Del Grande C, Dogba MJ, Fancott C, Levasseur MA, Loignon C, Majnemer A, Pomey MP, Rasiah J, Salsberg J, Santana M, Tremblay MC, Urquhart R, Boivin, A. (2021). Developing a Canadian evaluation framework for patient and public engagement in research: study protocol. Research Involvement and Engagement, https://doi.org/10.1186/s40900-021-00255-4

Williams I, Essue B, Nouvet E, Sandman L, Razavi D, Noorudhlhua M, Goold S, Danis M, Biemba G, Abelson J, and Kapiriri L. (2020). Priority setting during the COVID-19 pandemic: going beyond vaccines. BMJ Global Health, 6:e004686. Doi: 10.1136/bmjgh-2020-004686

Denburg A, Giacomini M, Ungar W and Abelson J. (2020) Ethical and Social Values for Paediatric Health Technology Assessment and Drug Policy. International Journal of Health Policy & Management, 10.32172/ijhpm.2020.144

Razavi D, Kapiriri L, Abelson J and Wilson M. (2020). Barriers to Equitable Public Participation in Health-System Priority Setting Within the Context of Decentralization: The Case of Vulnerable Women in a Ugandan District. International Journal of Health Policy & Management. DOI: 10.34172/IJHPM.2020.256

Vélez C, Wilson MG, Lavis JN, Abelson J, and Florez ID. (2020). A framework for explaining the role of values in health policy decision-making in Latin America: a critical interpretive synthesis. Health Research Policy and Systems, 18(1):100. Doi: 10.1186/s12961-020-00584-y.

Slater M, Johnston S, Wong S, Langton J and Abelson J. (2020). Priority measures for publicly reporting primary care performance: Results of public engagement through deliberative dialogues in 3 Canadian provinces. Health Expectations, https://doi.org/10.1111/hex.13100

Burrows K, Abelson K, Miller P, Levine M, Vanstone M. (2020). Understanding health professional role integration in complex adaptive systems: A multiple-case study of Physician Assistants in Ontario, Canada. BMC Health Services Research, DOI; 10.21203/rs.2.14367/v3

Denburg A, Chen S, Abelson J, Hurley J, and Ungar W. (2020). Does moral reasoning influence public values for health care priority setting? A population-based randomized stated preference survey. Health Policy, 124:647-658.  

Antonipillai V, Abelson J, Wahoush O, Baumann A, Schwartz L. (2020). Policy agenda-setting and causal stories: Examining how organized interests redefined the problem of refugee health policy in Canada. Healthcare Policy, 15(3): 116-131.

Vélez C, Wilson MG, Abelson J, Lavis JN, Paraje G. (2020).  Understanding the role of values in health-policy decision-making:  A multiple-case embedded study in Chile and Colombia. International Journal of Health Policy and Management, 9(5): 185-197.

Razavi SD, Kapiriri L, Wilson M, Abelson J. (2020). Applying priority-setting frameworks: A review of public and vulnerable populations’ participation in health-system priority setting. Health Policy, 124: 133-142.    

Burrows K, Abelson J, Miller P, Levine M, Vanstone M. (2020). Professional, practical and political opportunities: optimizing the role of Ontario physician assistants in family medicine. Journal of Canada’s Physician Assistants, 1(4): 17-33. 

Denburg A, Giacomini M, Ungar W, Abelson J. (2020). 'The problem is small enough, the problem is big enough': Health technology assessment and public policy on drug funding decisions for children. International Journal of Equity in Health, 19(45): 1-16.

Tripp L, Abelson J. (2019). Supporting women at average risk to make informed decisions about mammography when there is no 'right' answer: a qualitative citizen deliberation study. CMAJ Open, 7(4): E730. 

Bentley C, Peacock S, Abelson J, Burgess MM, Demers-Payette O, Longstaff H, Tripp L, Lavis JN, Wilson MG. (2019). Addressing the affordability of cancer drugs: using deliberative public engagement to inform health policy. Health Research Policy and Systems, 17(1).

Johnston S, Abelson J, Wong ST, Langton J, Hogel M, Burge F, Hogg W. (2019). Citizen perspectives on the use of publicly reported primary care performance information: Results from citizen-patient dialogues in three Canadian provinces. Health Expectations, 22: 972-984.

Bullock HL, Abelson J. (2019). A fresh approach to reform? A policy analysis of the development and implementation of Ontario's mental health and addictions strategy. Healthcare Policy, 14(3): 29-42.

Goold SD, Danis M, Abelson J, Gornick M, Szymecko L, Myers CD, Rowe Z, Kim HM, Salman C. (2019). Evaluating community deliberations about health research priorities. Health Expectations, 22(4): 772-784.

Abelson J, Tripp L, Sussman J. (2018). 'I just want to be able to make a choice': Results from citizen deliberations about mammography screening in Ontario, Canada. Health Policy, 122(12): 1364-1371.

Abelson J, Tripp L, Brouwers MC, Pond G, Sussman J. (2018). Uncertain times: A survey of Canadian women's perspectives toward mammography screening. Preventive Medicine, 112: 209-215.

Carroll SL, Embuldeniya G, Abelson J, McGillion M, Berkesse A & Healey JS. (2017). Questioning patient engagement: research scientists' perceptions of the challenges of patient engagement in a cardiovascular research network. Patient Preference and Adherence, 11:1573.

Abelson J, Allin S, Grignon M, Pasic D & Walli-Attaei M. (2017). Uncomfortable trade-offs: Canadian policy makers' perspectives on setting objectives for their health systems. Health Policy, 121(1): 9-16.

Montesanti SR, Abelson J, Lavis JN & Dunn, JR. (2016). Enabling the participation of marginalized populations: case studies from a health service organization in Ontario, Canada. Health Promotion International, 32(4): 636-649.

Abelson J et al. Public Engagement for Health Technology Assessment at Health Quality Ontario. Final report from the Ontario Health Technology Advisory Committee Public Engagement Subcommittee, Health Quality Ontario, April 2015.

Mitton C, Smith N, Peacock B, Evoy B, Abelson J.Integrating public input into healthcare priority-setting decisions. Evidence & Policy: A Journal of Research, Debate and Practice, 7(3): 327-343.

Daudelin G, Lehoux P, Abelson J, Denis JL. (2011). The integration of citizens into a science/policy network in genetics: governance arrangements and asymmetry in expertise. Health Expectations, 14(3):261-271.

Bombard Y, Abelson J, Simeonov D, Gauvin FP. (2011). Eliciting ethical and social values in health technology assessment: A participatory approach. Social Science & Medicine, 73(1): 135-144.

FRAMEWORKS, CONCEPTS AND TOOLS

PLACEHOLDER TITLE

Abelson J, Ganann R, Heald-Taylor G, Markle-Reid M, Petrie P, Raina P. (2020). Partnering principles and strategies: A guidance document. MIRA Collaborative for Health and Aging: Hamilton, ON.

Abelson J, Tripp L, Kandasamy S, Burrows K, on behalf of the PPEET Implementation Study Team. (2019). Supporting the evaluation of public and patient engagement in health system organizations: Results from an implementation research study. Health Expectations, 22(5): 1132-1143.

Abelson J, Humphrey A, Syrowatka A, Bidonde J, Judd M. (2018). Evaluating patient, family and public engagement in health services improvement and system design. Healthcare Quarterly, 21:61-67.

Abelson J, Wagner F, DeJean D, Boesveld S, Gauvin F-P, Bean S, Axler R, Petersen S, Baidoobonso S, Pron G, Giacomini M, Lavis J. (2016). Public and patient involvement in health technology assessment: a framework for action. International Journal of Technology Assessment in Health Care, 32(4): 256-264.

Abelson J, Li K, Wilson G, Shields K, Schneider C, Boesveld S. (2016). Supporting quality public and patient engagement in health system organizations: development and usability testing of the Public and Patient and Engagement Evaluation Tool. Health Expectations, 19(4): 817-827.

Li KK, Abelson J, Giacomini M, Contandriopoulos D. (2015). Conceptualizing the use of public involvement in health policy decision-making. Social Science & Medicine, 138: 14-21.

Jabbar AM, Abelson J. (2011). Development of a framework for effective community engagement in Ontario, Canada. Health Policy, 1010(1): 59-69.

Abelson J, Gauvin F-P. (2006). Assessing the Impacts of Public Participation: Concepts, Evidence and Policy Implications. Research report of the Public Involvement Network, Canadian Policy Research Networks, March 2006.

Abelson J, Gauvin F-P. (2004). Transparency, Trust, and Citizen Engagement: What Canadians are saying about Accountability. Research report of the Public Involvement Network, Canadian Policy Research Networks, December 2004.


METHODS AND APPROACHES

PLACEHOLDER TITLE

Abelson J. (2015). Patient engagement and Canada’s SPOR initiative. A resource guide for research teams and networks.

Blacksher E, Diebel A, Forest PG, Goold SD, Abelson J. (2012). What is public deliberation? Hastings Center Report, 42(2): 14-16.

Solomon S, Abelson J. (2012). Why and when should we use public deliberation? The Hastings Center Report, 42(2):17.

Abelson J, Warren ME, Forest PG. (2012). The future of public deliberation on health issues. Hastings Center Report, 42(2):27-29.

Abelson J, Montesanti S, Li K, Gauvin FP, Martin E. (2010). Effective Strategies for Interactive Public Engagement in the Development of Healthcare Policies and Programs A research synthesis commissioned by the Canadian Health Services Research Foundation and the New Brunswick Health Research Foundation.

Abelson J, Forest PG (for the Effective Public Consultation Research Team). (2004). Towards More Meaningful, Informed and Effective Public Consultation. Final report to the Canadian Health Services Research Foundation (RC1-0628-06).

Gauvin FP, Abelson J. (2006) Primer on Public Involvement. Prepared for the Health Council of Canada.

REVIEWS

PLACEHOLDER TITLE

Wilson M, Nidumolu A, Berditchevskaia I, Gauvin FP, Abelson J, Lavis JN. (2019).Identifying approaches for synthesizing and summarizing information to support informed citizen deliberations in health policy: a scoping review. Journal of Health Services Research & Policy, 25(1): 59-66.

Boivin A, L'Esperance A, Gauvin FP, Dumez V, Macaulay AC, Lehoux P, Abelson J. (2018). Patient and public engagement in research and health system decision making: A systematic review of evaluation tools. Health Expectations, 21(6), 1075-1084.

Abelson J, Blacksher EA, Li KK, Boesveld SE, Goold SD. (2013). Public deliberation in health policy and bioethics: mapping an emerging, interdisciplinary field. Journal of Public Deliberation, 9(1):5.

Gauvin FP, Abelson J, Giacomini M, Eyles J, Lavis JN. (2011). Moving cautiously: public involvement and the health technology assessment community. International Journal of Technology Assessment in Health Care, 27(1):43-49.

EDITORIALS & PERSPECTIVES 

PLACEHOLDER TITLE

Vanstone M, Abelson J, Bidonde J, Bond K, Burgess R, Canfield C, Schwartz L, Tripp L. (2019). Ethical challenges related to patient involvement in Health Technology Assessment. International Journal of Technology Assessment in Health Care, 35(4): 253-256.

Abelson J. (2018). Patient engagement in health technology assessment: what constitutes 'meaningful' and how might we get there. Journal of Health Services Research and Policy, 23(2): 69-71.

Boivin A, Richards T, Forsythe L, Gregoire A, L'Esperance A, Abelson J, Carman KL. (2018). Evaluating patient and public involvement in research. BMJ, 363:k5147.



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