Welcome to the Public and Patient Engagement Collaborative Website

Logo of the Public and Patient Engagement Collaborative

The Public and Patient Engagement Collaborative (PPEC) was established in 2011. Our research and service activities focus on the role of patients and publics in health system policy making and health research, with a specific focus on the evaluation of these efforts. 
This website has been designed as a portal to access the latest research and news from the PPE Collaborative and to share tools for use in practice. Please use the links above to learn more about the PPE Collaborative.
You can also get updates about the PPE Collaborative's work on Twitter.

Our Projects

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The Engage with Impact Toolkit was released in Winter 2022. This online toolkit consists of 5 modules to help health system organizations to plan to evaluate their patient, family and caregiver engagement, with a focus on impact. For more information on the Toolkit please visit the online tool.

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An updated version of the Public and Patient Engagement Evaluation Tool (PPEET) was released in 2018. For more information and to download the tool, please see the PPEET page on this site.

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The Public Engagement in Health Policy project aims to strengthen health policymaking in Canada by providing a platform for interdisciplinary scholarship, education and leadership in public engagement. For more information, visit the project website here.

News and Updates

OHT Report March 2021

Matters of Engagement Podcast: A retrospective look at public engagement, with Julia Abelson

Julia Abelson was a recent guest on the Matters of Engagement podcast as they launched their Health Policy series. The episode covers a lot of ground, including a recently released case survey report by the Public Engagement in Health Policy project summarizing trends in public engagement in health policy. 

You can listen to this and other episodes of the health policy series of the Matters of Engagement podcast here

OHT Report March 2021

As part of the launch of the Engage with Impact Toolkit the PPEC hosted a series of hands-on, interactive workshops to support organizations who are interested in implementing the toolkit. Each workshop focused on the implementation of one module of the toolkit and included a number of examples of how the toolkit can be used in practice. Additional information about the workshops, including the slide decks, can be found at the links below.

Workshop 1: Preparing for your evaluation (Module 1) 

Workshop 2: Tailoring your evaluation (Module 2)

Workshop 3: Selecting your evaluation measures (Module 3)

OHT Report March 2021

As part of the PPEC's work with Ontario Health Teams through our role on the Ministry of Health's Central Program of Supports for OHTs, we are pleased to release our report "Patient, Family and Caregiver Engagement in Ontario Health Teams: Learning from Early Experiences". This report shares the findings of a series of interviews we conducted with patient, family and caregiver partners and engagement leads from a number of Phase 1 OHTs in late 2020. The focus of the work was on understanding how patient, family and caregiver parters are recruited to OHTs; structures and activities established to provide opportunities for them to contribute, advise, partner or co-lead; the influences of COVID-19 on engagement, partnering and co-design activities; early assessments of impact; contributors and challenges to successful engagement; and, recommendations for supporting engagement and partnering in OHTs moving forward. 


Interested in engaging older adults as research partners but don’t know where to start? Check out this newly released guidance document to learn more about the core principles that should guide the involvement of Older Adults, Caregivers, and Public Research Partners in research activities and the best practices for carrying this out.

The guidance offers useful guidance for anyone interested in learning more about the basics of high-quality engagement.

Check it out here. 

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Dr. Julia Abelson and post-doctoral fellow Dr.Maggie MacNeil were featured on the second MIRA | Collaborative for Health & Aging Webinar. Speakers gave a background of patient-oriented research, discussed principles that guide the engagement of older people and provided insight into the results of a systematic review of the literature on the implementation and impact of patient or public involvement in health research. You can watch the webinar here.

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The Faculty of Health Sciences is committed to providing a website that is accessible to the widest possible audience. If there is an accessibility issue with this website, please contact us at fhsaoda@mcmaster.ca.